Participation Information

This copy of the consent form is for your information and records.
The consent form is built into the survey and you will answer there.

Deze kopie van het toestemmingsformulier is ter informatie en archivering.
Het toestemmingsformulier is in de survey opgenomen en je beantwoordt het daar.


We want you, and your family if you are under 18 years old, to feel fully informed. The letters above outline how consent works, what data we collect, and how we protect your information. The Information Letter for Participants outlines what is expected of potential participants under 18 years old in terms of parental or guardian consent. Please read the Information Letter and Consent Form carefully before proceeding to the survey. Thank you!

At the moment, the information provides pertains to the survey. More information on the interviews, including the information letters and consent forms, will be shared in future.


If you would like to participate, please start the survey by clicking the button or scanning the QR code.


🛡️Is my data safe? (survey)

In accordance with the General Data Protection Regulation (GDPR) and the Belgian law of 30 July 2018 (protection of natural persons with regard to the processing of personal data), we respect your privacy. All your data will be kept confidential throughout the research process as well as in any publications or presentations related to it.

Your answers will be pseudonymized, meaning any information that could directly identify you will be removed from our database. We also never record your name, you’ll instead be assigned a unique, 5-digit identification code. We will also redact any specific details you might mention accidentally (like names of people in your life or familiar places) to prevent indirect identification. If you choose to provide contact information for a follow-up interview, that data will be encrypted, stored securely, and stored separately from the survey responses on Ghent University servers. Your identity will never be shared or published. Only myself and my supervisor (Prof. Dr. Elly McCausland) will have access to the raw data.

All survey responses will be stored securely on Ghent University servers and encrypted. Only the researcher (Janieke Koning) and her supervisor (Prof. Dr. Elly McCausland) will have access to the raw data. No directly identifying information will be published or shared. If the results of the study are published, identifying information remains confidential.

If you want more information about how your data is protect, you can contact our Data Protection Officer: Mrs. Hanne Elsen, tel: +32 9 264 95 17, email: privacy@ugent.be, address: Campus Ufo, Rectoraat 2, Sint-Pietersnieuwstraat 25, 9000 Gent.